“Walking downhill in Paradise”

Avenue of Trees on the way into cabin near Mendocino

Parked on Cedar Street, walked past one beautiful garden after another (it’s mostly gardens here, not lawns), walked past the original Peet’s on Vine at Walnut and down to the Cheese Board Collective on Shattuck. Standing in line at the Cheese Board today, surrounded by people more or less like me. What a great thing to be able to do this quintessential Berkeley thing, walking through a beautiful community and standing in line for a great bakery. People and dogs walking by, people sitting and standing at the sidewalk tables, babies and old pe

Red Sea Orange Feather

ople and everyone in-between. Inside, past all the great cheeses and on to the bread counter. Got sourdough batard, spelt loaf, cheese roll, double chocolate cookies. I do this once a week, along with trips to a truly great produce market and to the big and unique Berkeley Bowl.

In the past two months we had lovely three-day visits from David and Charles and from Jean’s niece Anne and her great niece Beatrice. They were the first overnight visitors we’ve had since the downstairs bathroom was redone and everything worked well.

Red Sea Orange Feather

Drove to Carmel for a show at the Carl Cherry Art Center featuring Jean’s and Janet Lipkin’s work. It was the first time I’ve seen Jean’s work on a person and finally I really get it that these coats she’s made are sculptures. https://carlcherrycenter.org

Peter Goodman wrote a book about his family bakery on Telegraph Avenue in the 1950s and 60s. The Berkeley Historical Society sponsored an event around the book and about a hundred people showed up. Lotta white hair and canes in that crowd!

The mighty Pacific from van

Drove to Mendocino. Stayed in a nice cabin across from the small town of Mendocino on the other side of a fjord-like inlet along the Pacific coast. From Mendocino you can barely see the cabin on the headland among the trees. Spent a beautiful day at the Mendocino Coast Botanical Gardens. The dahlias are in full and breathtaking bloom. https://www.gardenbythesea.org

The journey with getting the VA to recognize my service-related challenges is over with my goals achieved.

Watching the sun go down behind Mount Tam with the mighty Pacific stretching endlessly beyond into the great beyond. And in the morning in the hot tub looking out over the SF Bay with fragrant Philadelphius flowers hanging down above us.

Morning from deck

I’ve been writing my obituary and planning my funeral. One of the “tasks” at the end of life (or, preferably before the end of life) is a “life review.” Involvement in hospice and related work has led to an understanding of the importance of reviewing and an obituary is really a summary statement of review (and thus is worth doing).

Happy Birthday in Mendocino Coastal Gardens

I flew to Dallas for an appointment. The flight was scheduled for 6pm, delayed until after 8pm, and after an hour and a half, turned around and went back to Oakland. There were emergency vehicles lined up where we landed, but nothing happened. The passengers all disembarked, walked to another gate, and got on another plane. I got home at 5:37am, took a quick nap and showed up at 8am appointment, then went elsewhere to transact business (feeling impaired after 24+ hours awake).

Going to friend’s homes for dinner or having people over. Meeting friends for lunch. This week we celebrated my birthday with Jean at Dalida in the Presidio. Nancy and Peter had us over for another birthday dinner and we had Andy and Simone over for dinner the next evening. Happy birthday, CK!

Morning – in hot tub looking up

Peter N-R and I were walking home from lunch at the Kensington Inn. It’s an uphill walk – uphill is getting harder and harder – to get there and a downhill walk going home. Peter said, “We’re walking downhill in paradise.” That’s right.

Days in the life – Berkeley, 2025

Looking out bedroom door from bed. Fog bank in the distance.

In the end we’re just carrying the water, tending the fire, planting and harvesting…

I was prompted to make this post by contact with a distant relative and a question from a friend near Point Reyes. My friend had asked, “What do you do?” (as I live my life). (Click photos to make big; then back arrow.)

Saturday. Got up at 6:30, fixed coffee and a little fruit bowl for Jean to have before her medications, and brought these to her. We drank coffee together, watched the sky and the distance from bed, and talked. From Jean’s place in bed she can see SF Bay and Golden Gate Bridge; I can see the Bay, Marin headlands, and Mt. Tamalpais. We call what we see in the mornings “the today show.”

A little after 8:00 Jean got up and bathed and I fixed breakfast. This morning it was the usual: fruit bowl with yogurt and granola for Jean and toast and almond butter for me. We’re close to California’s Central Valley and Oregon’s orchards, so the fruit here is exemplary. This morning we had a mix of pear, apple, orange, strawberries, blueberries, banana, and grapes. When I was in Dallas I baked all our bread for quite a few years. Now here, there are several great bakeries, selling levain, spelt, and other crusty, coarse, tasty loaves that are even better than what I baked. Today’s bread is levain from the Cheeseboard Collective.

We ate together in the living room, and talked, again with the view. I showered and Jean did Pilates. I tended the plants on the deck (again, the view) and Jean made some phone calls. The way we live with the Bay, the City (SF), Marin, and the sky and clouds and sun and fog and garden all right here means that outside and inside are not separate. When it’s just a little warmer we’ll sleep with the French doors in the bedroom open to the outside – “one door nights” and “two door nights.”

Jean is working in the kitchen, getting a to-go lunch together for a friend who is unwell. Someone is coming over in a few minutes to help with the irrigation system. He came – thank you! We planned on a walk at the nearby middle school track, but didn’t do it. With my iPhone I’m in my third year of counting steps. In year two I increased steps by about a quarter mile and in year three, by another quarter mile.

Thyme in flower

Watered front garden for an hour. Plants in bloom right now are thyme, nasturtium, sweet alyssum, two kinds of alstroemeria, two kinds of California poppy, calla lily, three kinds of iris – including from Jean’s father, butterfly sage, borage, tansy, agapanthus, columbine, lavender, rose geranium, yellow tagetes, coreopsis, impatiens aloe vera, day lilies, and the lime tree.

Back downstairs garden

Jean has had a contractor working on the downstairs bathroom. To start the job she had to move quite a bit of fabric and artwork out because the bathroom was basically used as a large storage area with a toilet and sink. There were many remnants of dyed and felted wool, which Jean sorted and bundled according to colors, and then stacked in the downstairs bedroom. Somehow, to me anyway, the stack of bundles became an art installation. Some of the textiles went to art schools or artists collectives. It’s like the extras from a lifetime of textile art.

At work in her studio

Right now, she’s in her studio, working on the third in a series of self-portraits related to health challenges over the past few years. This one is heart-related. Others include the spine/pain and the neurological challenges of dysautonomia. I’m unsure about how long she’s been working on this series – a month, at least.

The house is kind a kind of unassuming one-story bungalow on the outside (with an extravagant garden). Inside it is like in the song, “hangings rich of many strange designs” very beautiful. The hidden away downstairs down winding stairs has a small room for Jean’s archives, a laundry room, a bedroom, a storage room, a bathroom, and a large bright, high-ceiling studio opening out on a deck and more garden. The deck reminds me of a Thai or Cambodian artisan area with its bamboo poles for hanging fabric.

Being as old as we are means (among other things) spending a lot of time taking care of our bodies. We’re like athletes, always working out, dealing with injuries and infirmities, eating special diets, trying to stay in shape…

Tonight we picked up our friend, Susan and went to dinner at Kiku Japanese restaurant.

Sunset from deck

Jean and Susan split some sushi and I had yakisoba noodles. Not unlike pad Thai.

I always look forward to going to bed with Jean in the evening. The goal is to get there before 9 pm and we usually make it. We take turns deciding on “the entertainment” (computer TV) which basically lasts for an hour. Right now it’s kind of rotating among White Lotus, the Americans, This is Us, and some mash-up of Seinfeld, Colbert, Midnight Diner, and Mark Wiens. For us, TV is one of the outcomes of the pandemic, i.e., something that changed as a result of the pandemic and lockdown. Other changes include having as much mayonnaise and butter as I want, because, you know, we could all die at any time. I’m out there on the edge again, man.

The track at King Middle School

Sunday. Up at 6:15, fix coffee, meds together, small fruit bowl for Jean so meds won’t be on empty stomach (I always put it in the plastic bowl I got on a Cathay-Pacific flight about 25 years ago). Lying in bed watching the sky and sea and land. We did a short “grateful” – in which we set an alarm for five minutes and lie there quietly thinking of things for which we are grateful.

Breakfast was poached egg and toast. My secrets to poached eggs is very light oil to skillet, cold water brought to boil, slip egg sloooowly into the water so that it cooks a little as it goes in, cover to skillet. When they’re about done, use spatula to loosen eggs. Turn over if wanted (I sometimes make a mess doing this.) and poach to desired doneness. Serve on toasted levain or spelt. Trader Joe fresh “medium” salsa from cold case. In this and all other matters, no salt cooking or serving. Tastes great!

Walked at Martin Luther King Middle School track. There were people of every age – old and young – and every physical ability, walkers, runners, fast and slow, and soccer teams playing. When the soccer game is over there will be a volleyball game on the field.

Lunch together. I had a sandwich made from leftover bun bo xao beef and Jean had leftover sushi.

Front garden

Nap.

I worked on the sprinkler system in the garden. As always I got soaked but finally got things set up for the dry season. Jean worked on her “Kona’s rug,” which was just cleaned. Kona was her well-loved black Labrador. We talk about getting a dog, but it doesn’t seem practical at our age. Still…

Obsolete: 25 years ago I realized that one of the major disconnects between the healthcare system and refugees and immigrants was that patients from foreign lands were worked up like patients from the US (except of course that there were more barriers for foreigners). Despite a high probability of parasites among patients from developing nations, parasitic infection was a distant differential so there was always months of delay before getting to the cause of a problem. And, at least in primary care, emergency care, and elsewhere there was a general lack of awareness of infectious and tropical diseases. Thus was the book Infectious and Tropical Diseases conceived.

I developed the differential diagnosis sections of the book and then two colleagues and I worked on diseases sections for over a year and in 2006 it was published by Elsevier Science. A unique characteristic of the book was that diseases, symptoms, and geography were extensively cross-referenced, so that readers could quickly zero in on symptoms/diseases endemic to particular locales. It was a good book and we got good reports from practitioners working in refugee and international health. Yesterday I had the jarring realization that the innovative cross-referencing concept has been made obsolete by AI. Of course, the book has been out-of-date since a few years after publication, but the concept!

Here is what Chat GPT said in response to the query “50-year old Kurdish male from Iraq with abdominal pain 10 years duration:” “The diagnostic approach should consider both common global causes and region-specific infectious, environmental, and psychosocial factors, particularly given the Kurdish population’s potential exposure to trauma, limited healthcare access, and endemic infections.” Hydatid disease, strongyloides, and schistosomiasis were noted as risks by ChatGPT.

If this all seems irrelevant, recall the 2014 Ebola case undetected for several days at a major Dallas hospital. Now that was scary, at least among ER staff, refugee health workers, and people living near the sick man! Three cheers to AI!

I lost track of keeping track of everything. Getting a little random.

From my last trip to the bathroom about 0500 I saw through the deck door the yellow/orange moon hanging low over the Bay. It was beautiful but not enough to wake Jean.

Leaving Point Reyes

I’m thinking there’s a certain sameness to life these days. There is love, there is surpassing beauty in life, lots of gratitude, some seriously good times and seriously hard times. I feel like I understand life better. I think of the challenges of the day. I think often about David and Leslie and Jean. I think about traveling, war, working with refugees, the clinic, friends, people who have helped me (and people who have hindered me, people I’ve worked with, writing, teaching, hospice, life, the end of life, the house in Dallas. I’m happy I worked so hard and accomplished what I accomplished. We do social things 2-4 x week like dinner with friends, lunches out, museum trips (Jean does the museums; me, not so much.

Another day: Tracking in detail.

Coffee in bed – Jean’s mug is from a gallery in Red Lodge when we went to see Courtney in Montana and my mug I bought from a Chinese dollar store during David’s and my first trip to San Francisco. Fruit snack in a Cathay Pacific mini-bowl from long ago.

Sunset

Talking

Breakfast – JC smoked salmon and cream cheese on spelt, fruit salad (orange, apple, grapes, strawberries, blueberries, banana); CK fruit salad with yogurt and toast (levain and spelt) with almond butter from Berkeley Bowl – all served on plates from Jean’s Mom and bowls made by a neighborhood potter, James Newton, and I’m eating with my spoon from Cathay Pacific. 

We go to a bayside art and nature place (“The Bulb”), but the wind off the Bay was so strong and cold we left and went to our usual weekend walking place, the MLK Middle School track. On the way stopped at Monterey Market for the first fresh corn of the year and a big bunch of chard. On to the track.

The other night I made stuffed small new potatoes like we had at the Amet Haveli hotel in Udaipur (this time I stuffed with cheese, chives, ham, z’atar). Baked, split, scooped out, mix cream cheese, lots of chives, tiny pieces of a small slice ham, potato and stuff the little potatoes. Top with cheese – used provolone. Re-baked ~10 minutes.

Morning, Mount Tam in distance

This week Jean has been to a women’s gathering in Sonoma, I’ve had lunch with Peter N-R, and we’ve had dinner with Nancy and Peter and with Susan.

Jean finished an art piece: The Heart. See above re series. 

Challenges faced: Pain, feeling tired, medication side effects, the complexities of navigating the health care system even when things are going pretty well, rising prices, the moral decline/the corruptionof America, the gutting of values of decency, honor, honesty, and so on.

Back to the photo of the morning sky:

Morning has broken, like the first morning.
Blackbird has spoken, like the first bird.
Praise for the singing, praise for the morning.

Praise for them springing fresh from the Word

“Baby, ain’t it all worthwhile.”

Another week in Berkeley, 2024

From the bedroom – the Today Show!

I was listening to the Van Morrison song, And the Healing Has Begun. The song resonates powerfully with Jean and me, in part because it was in our life together that the healing from our spouses’ deaths really began – and of course, thanks to David and John and Jeff and Janet and Susan and Sherry and others for keeping us pretty well until Jean and I met. Among the lines in that song that resonate most powerfully are:

We’re gonna stay out all night long
We’re gonna dance to the rock & roll
And then we’re gonna go out and roam across the field

The last time we stayed out all night long (other than at a hospital, LOL) was in 2018 when Jean and I were at a psytrance event thrown by the collective (Atrium Obscurum) that I’d been part of previously. It was a three-day, two-night party, but we were only there from Friday afternoon – Saturday morning. We worked the gate Friday evening (my last work with Atrium Obscurum) and hung with friends and then Ro’s Rage Against the Machine cover band played and then the opening ceremony and then the dancing began. We were awake through the night in our forest campsite, sharing words of love, kissing, making love while the music pulsed and people laughed and danced in the forest and over on the earth dance floor under the trees all through the night. In the morning we went to the dance floor, then to a yoga meeting with Kristina, and then we went swimming at the nearby spring-fed Lake Daingerfield. It was all magical…

At psytrance party

We’re gonna stay out all night long
We’re gonna dance to the rock & roll
And then we’re gonna go out and roam across the field
The music was psytrance instead of rock and roll and we swam in the cold spring waters instead of running across the field, but it’s all the same.

——————-

Searching through my blog for something related to Van singing And the Healing Has Begun I came across one loving post after another. Really a lot. Oh, the magic of our life together – where the healing really did begin! I’m awed by our reality then and now. I am so grateful to you, Jean. These days we sit naked in the warm waters of our hot tub with the moon shining, an owl hooting off to the north, and The City all lit up in the distance. What a time we’re having.

I found posts from 2017 and 2020 with the same title, Another Week in Berkeley. So here comes yet another week in Berkeley from now:

Tuesday, 2/13

Hot tub at sunset

We’re still chugging water to start the day, snack, meds, then our very own “Today Show” – what we see from our cosy, warm bed looking through the bedroom doors across San Francisco Bay, the Marin Headlands, Golden Gate Bridge, sky, clouds… talking, coffee, massage, .

We’re still having fruit salad most days for breakfast: today it was pear, strawberries, blueberries, a little apple for the crunch, yogurt, maple syrup, toast, almond butter. After breakfast we had a soak in the hot tub (more on that in a moment).

Jean went to the dentist and I went to a Pilates session with Sandra. A few months ago Peter N-R gave me a session with her (Thanks, Peter!) and I’ve been going back weekly since then, except when I had covid.

We exchanged Valentine’s Day cards (more words of love). Jean and I fixed dinner: scallops in a simple, deep sauce with pasta and brocolinni.

Wednesday 2/14

Jean made this Valentine’s Day card for me

Another day in Paradise, starting in the bed with meds, snack, mate, and the Today Show. First thing in the morning, hummingbirds fly straight up high in the air before they zip off to somewhere. There is a willow-related tree growing below our house and the top of the tree is eye-level for us. Hummingbirds like to perch on the very tip of the tip-top branches like little kings of their demesne.

Breakfast this morning was a “giant cookie”: oatmeal with strawberries and blueberries, Jean’s with butter and mine with almond butter, maple syrup, milk. As always, we ate together in the living room.

Afterward I drove to Solano Avenue, parked, and walked way down the street, then back up the other side, then to Peet’s, and then Andronico’s for strawberries, milk, and King Arthur flour.

After lunch we took a nap, then Jean went to Freida’s for haircut touch-up.

Exercise

I walked up to the Kensington market for ground beef and Jean fixed meat loaf, mashed potatoes, and broccolini for dinner, accompanied by Levain from Acme Bakery.

Since the pandemic began we’ve been watching television for an hour every night. Tonight we watched Sol Life on YouTube (the day-to-day solitary life of a woman in Japan) and part of a romantic comedy.

In the front garden

Thursday 2/15

Snack, water/electrolytes, meds, Peet’s for me and herbal tea for Jean, Today Show.

Hot tub, breakfast (kiwi from tree at Lisa’s studio, Asian pear, pear, strawberries, blueberries, banana, yogurt, toast and almond butter, granola).

I drove to the Berkeley Kaiser Permanente pharmacy to pick up Rx, then to nearby Berkeley Bowl for groceries. Home.

Lunch

Nap

Jean was in her studio in the late afternoon. I did Pilates exercise, went for a walk.

Jean fixed dinner – minestrone and I helped with prep and cleaned up.

Read

Friday 2/16

In the Today Show, huge fog banks covered most of the mountains/headlands so that it looked like big mountains in Colorado. We talked of the challenges we all face at this age, some of us more than others of us, some physical, some psychological/emotional, but all of us dealing with something significant.

Where we camped at psytrance party. Mid-left is the hard-to-see-in-the-day suspended heart that lit up the night.

We took a short hot tub.

Breakfast was (for Jean) smoked salmon on toast + fruit salad (Asian pear, pear, strawberries, blueberries, orange) and for me the same fruit salad with yogurt + toast and almond butter.

Jean went to the middle school pool for water walking with Janet and then a quick stop at Trader Joe’s. I walked up the street to the “top of the hill” and back down (~2,000 steps), then Pilates exercise.

Lunch was meat loaf, mashed potatoes, cheese, salsa sandwich for me and salad for Jean.

Nap, talking under the covers.

I made granola and Jean fixed a salad to go with the minestrone when Janet and Larry come over later.

Enjoyed judgment against Trump. I’m enjoying it very much!

A fence along where I walked

Had a nice Shabbat dinner (minestrone, salad, cheese with tangerines and chocolate for dessert) and fellowship with Jean’s oldest friend and her new partner, Larry. He says it’s a miracle to have this connection with Janet at this age. I concur – we’re all living a miracle!

Easy clean-up since most of the cooking done yesterday.

A TV show that once again showed that it’s a vast wasteland out there.

Sleep.

Saturday 2/17

Coffee, snack, meds, talk, Today Show, watching the sky transition from grey to pink to cloudy to clear, . Hot tub.

Fruit salad, granola, yogurt.

Jean watching a podcast on Egyptian textiles and I’m writing this and reading more about Trump judgment. Got a text from Linda B: I’m going to sit for a portrait with her art group soon.

I’m problem solving re portable speaker and Jean is in her yoga room, then studio.

Lunch: another meat loaf sandwich for Mr. Adventures!

Stone wall, moss along where I walked

Nap together, lying in bed (again) talking.

I spent the rest of the afternoon writing, reading news feeds.

Jean was in the studio late afternoon, then came upstairs and fixed broiled salmon, salad, Acme levain.

Watched part of a French movie, L’Envol (Scarlet) – pretty good.

Slept.

Sunday 2/18

Coffee, snack, meds, talk, . Hot tub.

Dishwasher not working, so we unloaded a full load and started washing dishes.

I fixed omelet with goat gouda cheese, mushrooms, green onions, levain, ½ sweet Italian sausage each for breakfast.

Washed dishes.

Talked with someone on the phone regarding how to prioritize and coordinate medical care with a spouse. Wrote f/u text.

Jean in India about 10 years ago

Hi ——–,

In summary, the main problems that should be addressed quickly are:

Nausea and vomiting AND subsequent dehydration. There is an effective nausea medication (ondansetron) and he should have some at home as well as when in ER. There’s a good chance he’s dehydrated and in need of IV fluids now.

Pain – probably needing more than Tylenol or ibuprofen. Note that ibuprofen should be given with food to avoid stomach upset.

The past problem with ER should not influence you to avoid seeking care. They’ve already tried to make it right and may have to try more, but you should still go. You can also go to a different hospital. You should stick with him at ER to head off conflict.

The prostate and back are probably not priorities right now.

Wishing you and ——- well.

Charles

Went to MLK middle school track and we (or mostly Jean) walked with Susan. I’m using my iPhone to keep track of my steps these days. Most days I exceed my target.

Trader Joe for several things, including TJ salads for lunch

Lunch

Sunset from deck

Finish washing dishes

Nap, talking about life, including Jean’s friends M and V who recently died in their 90s, died within a few hours of one another, and lived independently and well in their house in the Berkeley Hills until death. There are many sad and even desperate stories happening among older people, including people we know. It’s well to remember M and V whose story is a triumph. And Jean’s friend, K, in her 90s, still in her home (with a fair amount of assistance). H and J, late 70s and early 80s, living in wooded hills near Point Reyes, growing quality cannabis. C and J, in their mid – late 70s, dealing with significant physical issues and living a beautiful life… We joined Ashby Village last year. Ashby Village is part of the village movement happening here and elsewhere. Through members and volunteers members work to remain in their homes as they age.

Talked with David.

Pilates exercise.

Writing this…

Fountain near the house

Reading news feeds. I read a lot of news. I think things are pretty horrible for many people around the world. I worry about the wars in Ukraine and Gaza. The news in the US, especially political news, is weird and unsettling. I’m unsettled.

Jean in studio.

Dinner was salmon in Indian curry paste (Sukhi’s brand) in coconut milk, cauliflower, slaw

Reading in living room, then taking a soak in the hot tub.

Watched movie, Scarlet) for an hour. Goodnight…

Monday 2/19

I woke up early and got up to write something re a neighborhood issue (whether the neighborhood forum is an appropriate place to discuss a petition to recall our county DA). Here’s what I wrote:

Reflecting on the question of politics entering this neighborhood discussion group, I see with greater clarity how much public safety and health are enmeshed in politics.

For me, personally, as I age and my physical abilities decline, a completely non-responsive Berkeley/Alameda forces me to live with a cracked, uneven sidewalk in front of my house (only one fall, so far) and a shameful lack of bus benches for impaired AC Transit riders like me. Because of so much urine on downtown sidewalks, I had to spread newspapers on the sidewalk to sit when I was unable to stand while waiting for a bus. Like crime, these are public health/safety issues and any solution to them will include politics.

I appreciate the opportunity to step out of my kitchen door to sign a petition to recall. I felt no pressure to sign. And I don’t feel there is a risk to neighborhood cohesion or relationships related to this discussion!

Fixed coffee, snack, meds, lay in bed talking, .

Oh! There’s a rainbow over The Bay!

Hot tub

Fruit for breakfast: Asian pear, pear, grapes, blueberries, strawberries, apple

Worked on medications

Installed color toner cartridges in color laser printer. I am smrt! I am smrt!

Night sky

Lunch: granola for me, smoked salmon and goat cheese for Jean.

Nap

I did a lot of nothing from 3-5:30, then to Sol’s for dinner. Sabich sandwich for me, mesquite smoked trout for Jean. Best trout since I lived in Colorado. Jean agreed.

Hot tub.

I chose the evening’s entertainment: Seinfeld and Young Sheldon.

It rained during the night.

That’s another week in Berkeley.

About the hot tub: I gave Jean a hot tub (or spa) for Christmas and she paid for retrofitting the deck so we could have the tub on the same level as bedroom and living room. It’s exactly 20 steps from the tub to the shower. Nice! Thank you, Sweet Thing!

Highway from Marathon to Big Bend. We’ll be on that road in a few weeks on our trip to Marfa and Big Bend

Love in the time of cancer

We went to an anniversary party for two of Jean’s long-time friends. It was a celebration of love – the need for love, the beauty of love, the healing power of love, the joys of love, the enduringness of love…

Dinner was with about 30 people at a long table poolside in a garden on a hill sloping down to a vineyard and the weather was perfect. I didn’t take any photographs, alas, but this photo taken a few years ago captures the vibe.

In Big Sur

Among the six people I knew sitting with us were three cancer survivors, three widows or widowers, one person whose spouse has succumbed to dementia, at least one facing significant chronic illness, and all of us in love. Buoyed by love, all of us face to face with ultimate questions and all engaged with the final life stage of integrity vs. despair. All have lost so many, many friends and loves. I imagine just about everyone at the party is in more or less the same circumstances.

Years ago, when I was working mostly with older people I came to realize that I had much to learn from them about love. Love in the time of cancer. Love in the time of dementia. Love in the time of stroke. Love in the time of dying and death. And love in the time of romance. This is it. This is what we are given. This is as good as it gets. This life. This love. This hope. I’m glad to be one of those older people now.

Our friend Peter told me that every morning he and his partner set a timer for 5 minutes and spend those 5 minutes reflecting silently on gratitude. Now we do that.

“And now these three remain (endure): faith, hope and love. But the greatest of these is love.”

Afternoon magic, The Dreamer, gratitude for her presence, love on the way to the toilet, what matters now, epic journeys, John Chase, years of living dangerously

David, Jean, The Dreamer in David’s office

In the afternoon, taking a short nap, then lying spooning, tangled up together for I don’t know how long – 20-30 minutes, warm, so comfortable, comfortable physically, emotionally, puppies, lovers, friends, the afternoon sun starting to come in the doors, crystals sparkling, alive, rainbows on the walls and our bodies, knowing that literally this is as good as it gets, grateful. Remembering and writing this is as close as I can come to preserving the magic.

The Dreamer photo was taken in David’s office at UC Berkeley. Jean gave him The Dreamer. When we put it up, she explained some of how and why she made it. It’s felted wool. All of the lines on the body and face were sewn in and everything was shrunk.

Another day, kind of cold, taking a nap. Under the covers I encircled your warm, soft right thigh with both hands and we fell asleep like that… and awoke 20 minutes later – like that. This too, is as good as it gets.

The Chancellor’s Garden – in the Berkeley Hills

—————

Going through flyers and things related to events I’ve attended (mostly psychedelic forest gatherings) I ran across this from an Each Moment Matters event:

Remember not that she died; but that she lived.

Of course it’s not one or the other; it’s both, in varying degrees. But there is movement toward more good days than bad. And now, five years later, the days are all good. I think of Leslie a number of times every day. Her presence is like an overlay to my life and I think of her more in brief moments than in endless sad ruminations; more in gratitude for her presence in the world and in David’s and my life. More in being inspired by her. Just the love. Not the awful pain.

—————

I told my doctor that when I was getting up four times a night to pee, it was okay, because I’m happy, including when walking in the hall (“with hangings rich of many strange design”) on the way to the bathroom. But five times is too much.

Morning has broken, like the first morning…

—————-

We were talkingabout being with a friend with ALS – a friend who is moving inexorably toward the end of life, who is unable to speak; but who can use her eyes with a computer to spell out messages. What do you say when there is nothing left to say? This specific question emerged:

What matters to you now?

Burning Man art – at Oakland Museum (Kristina!)

And it’s a question for us all, all the time. What matters now? Jean asked her friend this question. Love was right there at the top.

We see that personal growth can be part of the process of dying; that values clarification has value until the end; that the human spirit turns toward the light – toward love.

—————

Jean’s sister, Ginny and brother-in-law, Jim were here for a couple of days. They had flown from Tucson to Chicago, then caught the California Zephyr (Amtrak) to Denver, through the Rockies, across Utah, through the Sierras (all of this in deep winter), and on into Oakland. From Oakland (Emeryville) they’ll take the Coast Starlight to Los Angeles and from there, the Sunset Limited to Tucson. Pretty cool!

Back gate I made for Dallas house

Years ago, Jim’s doctor in New Jersey told him he had to quit smoking or die. So he flew to the west coast and rode his bicycle back to the east coast and by the time he got to the Atlantic Ocean, he had truly quit tobacco. Epic.

I was looking at Ginny and Jim’s New Zealand cycling blog: 59 days, north to south, 30 nights in a tent, seashores, up hill and down dale. More epicness. This man understands epic journeys.

So I was thinking about epic journeys in life. It’s worth thinking about. Some of my epic journeys are 13 months of combat, the hippie years, taking care of Leslie at the end of her life, a 10 day solo trek into the Wind Rivers wilderness, and other journeys across geography and mind/heart.

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From the deck

In 1988, when I was operating community health programs out of the East Dallas Police Storefront, a police officer was murdered in downtown Dallas. John Chase was shot three times by a homeless man who had grabbed John’s pistol. John pled for his life while a crowd was urging the man to shoot: “Kill him!” they were shouting. “Kill that white mother-fucker.” I had only met John once, but the killing hit me hard because he was a nice guy and because nobody tried to stop the killer. Afterward I made a clear commitment that I would never let something like that happen in my presence, regardless of the risks. I’m older now, and not much of a badass, but here it is again: the same commitment to the memory of John Chase.

As with all other murders, John was autopsied. His partner, Gilbert was there for the entire procedure. Gilbert is a true warrior.

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Can you see how this blog functions as a kind of memoryizer (new word meaning promotes remembering)? I guess it’s a way of keeping my shit together, as we used to say.

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Sunset from the deck. NOT Photoshopped

My high school class (1962) has a Facebook page. 20-25% of the class is on that page. It’s nice. Everyone on the page is about 75 years old. There are all kinds of realities associated with that age. In a recent discussion three people noted that they are homebound. Death is near for most of us and not far for the rest. I recently posted on that FB page:

These are truly the years of living dangerously. A classmate’s recent listing of classmates who have passed (about 20% of us) was such a powerful document. And here we are, still living after all these years! We’re all kind of like people living with cancer (and some actually are) – each day, each moment, each touch, each kind or loving word… Treasures. Here’s to each one of us, here and not here.

And it feels so good, and it feels so good

In a meadow, 2016

Three years ago, right before our Endless Summer began we went from Aptos (near Santa Cruz) to La Honda (where the Merry Pranksters had a scene). On the way we stopped in the Coastal Range on the side of a mountain and walked “in a green field, in a meadow, through the buttercups, in the summertime” (from Take Me Back by Van Morrison).

The moment the Endless Summer began in Mendocino in May 2016

Sometime around February 2019 we talked about doing that same thing as a goal in the process of going through the physical challenges we were going through. There was a time (December, January, February, March) when there was no way we could have walked together in a green field like that.

Take Me Back is one of “our songs” – along with The Healing Has Begun and Sweet Thing.

And so last week we went to La Honda. We walked in the green meadow, in the flowers, down an avenue of trees (big trees!), in the misty morning, We took a hot tub (with the Coastal Range spread out before us) with Bill and Lisa, had dinner with Larry and Judith and Bill and Lisa, and spent the night on the floor of Lisa’s studio where early in our relationship we had one of the best nights of our lives – rainy cold night, fire in the pot-belly stove, air mattress leaking, so warm and beautiful…

Down an avenue of trees, 2019

Below are some words from Take Me Back. In this past week we went back, back to when we understood… now, understanding, we’re back, living like this and for the first time in months we…

We didn’t have no worries,
We didn’t have no care.

And yet

In the most difficult times,
In the dark hours

We felt good about life,
About one another – about our loving life
Never losing focus

It was a good hike to and from this beach. Like the beach where the Endless Summer began. No other people, 2019

Van (Here is YouTube of Take Me Back – opens in separate window):

Take me… way, way back, way back
When you walked, in a green field, in a green meadow
Down an avenue of trees
On a, on a golden summer
And the sky was blue
And you didn’t have no worries, you didn’t have no care

You were walking in a green field
In a meadow, through the buttercups, in the summertime
And you looked way out over, way out
Way out over the city and the water
And it feels so good, and it feels so good
And you keep on walking

And the music on the radio, and the music on World One radio

In a meadow, 2019

Has so much soul, has so much soul
And you listen, in the night time
While we’re still and quiet
And you look out on the water
And the big ships, and the big boats
Came on sailing by, by, by, by

And you felt so good, and I felt so good
Take me back, there, take me way back there
Take me back, take me back, take me back
Take me way, way, way back, way back
To when, when I understood
When I understood the light, when I understood the light
In the golden afternoon, in the golden afternoon
In the golden afternoon, in the golden afternoon

Our little yurt in the forest, 2019

Take me back, take me back, take me back
Take me way, way, way, way, way, way, way
Back when I, when I understood, when I understood, yeah
Oh, ah, take me way back, when, when, when, when, when, when
When, when, when, when, when, when, when
I was walking down the
Walking down the street and
It didn’t matter
Cause everything felt, everything felt, everything felt
Everything felt, everything felt, everything felt, everything felt
Everything felt, 

In the rhododendron forest at Mendocino Botanical Gardens, 2019

everything felt, everything felt so right, ha!
And so good

Everything felt, so right, and so good
Everything felt, so right, and so good
Everything felt, so right, and so good, ah!
Everything felt, so right, and so good
Everything felt, so right, and so good, so good
In the eternal now, in the eternal moment
In the eternal now, in the eternal moment
In the eternal now

Bed and breakfast

________________
Back to Berkeley for a few days and then drive to Mendocino – north on 101, through the hills and vineyards, west on 258 through Navarro Redwoods State Park where we turned off on an unmarked road and walked for a bit among the redwoods and then up to Highway 1 to Albion and winding up along the coastal headlands, and there’s Mendocino, from a distance looking like I imagine old New England looked like with beautiful old white buildings, and up close the gardens are pure lush California!

We stayed for two nights at the McCallum House, a nice bed and breakfast a short block from the main street. We walked the headlands, we walked in a rhododendron forest, we sat on the same bench above the crashing surf where we sat three years ago, we laid on a sarong on a beach in a golden

Inside our yurt

afternoon with waves rolling in and hissing back out, we hiked down to another completely deserted beach in a cove and lay alone with just the sky and sea and rocks and surf and sand and sea gulls soaring (this was exactly how the Endless Summer began). The hike back up from the beach was steep and by the time we got back to the trailhead, we knew this hike was a measure of where we are in the process of healing – and it’s a good place.

From Mendocino we took a winding and sometimes rough road to Orr Hot Springs. Along the way we walked in a redwood forest – the only people there, walking down an avenue of trees along a stream bubbling along beside the flat(!) trail. A few miles down the road we got to Orr. We checked in, put our stuff in a cart and hauled it up a path and then carried it  up two flights of stairs to our fine little yurt in the forest. No locks on the doors of the rooms at this place, except when you’re in a room you can latch the door.

Jean – Mendocino headlands, 2019

The vibe at the pools and elsewhere was so good. Good mix of ages and orientations. It felt sexy to me, but there was no acting out. The hot pools are small, but Orr limits the number of day users and campers, so it was never crowded. Everyone has to bring and prepare their own food, so, as so often before, there we were in a kitchen full of nice people cooking/cleaning up whatever – a scene I’ve always enjoyed. There was one little grove where smoking was allowed. The smoke of choice was grown right there in Humboldt county.

Front garden

We were only at Orr for an afternoon, night, and into the next afternoon. It was beautiful, peaceful, quiet (no wifi), a loving and affirming place for us. Berkeley in about three hours. Look at those sweet peas! Pick some strawberries. We’re home.

Random writing – lunar eclipse, the way to the back yard, ER, cardiac cath, lion…

Photo from David Prosper in Richmond, California, a mile our two from us.

I write things that never get posted. Here are some things I found in a few files from several months ago.

We got up at 5 in the morning to see the lunar eclipse. Wrapped up in blankets and a sleeping bag on the deck with the moon hanging perfectly far away above the sea and us getting all dewy damp.

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Back garden from the deck

The mystic way to the back garden lies down a narrow stairway with patterned textiles and warm golden light and a couple of turns and through a workroom – now through a narrow hallway, turn right, then left and down four steps into Jean’s studio with high ceiling, the big work table, the sewing machines, journals, materials and mystic masks on the wall – wolf, goat, crows, spirit animals all – through the door onto the covered back porch, past a chaise on the left and on the right, chairs and two big work tables, and now the back yard.

The back yard is small. A path curves off the back porch/deck. Step down 1 – 2 – 3, with chamomile growing between the steps and mint on either side and the path curving past a low stone wall on the right with the large flax plant and earlier in the year there were tomato and pepper plants, and basil, lettuce, and chard. On the left succulents, day lilies, hydrangeas, a bush with purple flowers, calla lilies, and a stone Buddha statue. There is a bamboo grove and a patio where I’m building two raised bed grow boxes.

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Streams of consciousness…

The past, running through me alive, beautiful, love not lost love alive and within, reborn, 73 years, death not too far away and how can I lose? Love behind, Love now, Love beyond. Reborn into this!

This endless summer, this endless summer of love.

Jean drove me to the ER at Alta Bates Hospital in Berkeley. I had been short of breath for several days, waiting to go like any other dodgy patient. (I asked myself, what would I say to a friend or patient with sob – go to the ER, of course. So I did.) They took me back right away while Jean waited out front. They took vitals, drew blood, EKG and put me in a room. I went out to the waiting room. “Go home.” “No.” “Go, I’m fine.” “I’ll wait.” But finally she went. CXR, chest CT. Out of cell phone touch.

The past, Love; the now, Love; the beyond, Love. In the room, thinking of Leslie, David, Jean, David, Jean, Leslie, Jean, Leslie, David, life, love. It won’t be, but what if this is the last thing I write? I’ve lived, I’ve loved, I’ve been loved. My epitaph.

And I will never grow so old again. Close to three years ago I was so old. I was dark and dying and now I’m reborn.

The things I will leave.

I imagine when it happens – when I die – I’ll feel a pulse of fear.

Bill, Lisa, Charles, Jean in New Orleans

Finally, they cut me loose, with some abnormal findings and instructions to follow-up. More on that in a moment.

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We flew to New Orleans with Bill and Lisa to celebrate Bill’s 70th. In a club in the Treme, sitting in the back (kind of the senior section). Rock & Roll will live forever.

I am happy. It’s 12/1, 2017, 747 pm.

And we’ll walk down the avenue in style,

And we’ll walk down the avenue and we’ll smile,

And we’ll say, “Baby, ain’t it all worthwhile.”

When you hear the music ringing in your soul,

And the feeling in your heart just grows and grows…

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The moon was shining bright when we awoke in the alive night. We made love in the dawning light.

————

A page from Remember

Reading Chops WanderWeird’s book, Remember: “I’ll tell you of many things, but the first and most important is that you already know all of this” (one of the hippest things I’ve ever read), and you, Jean already know all of this. I don’t think Chops was trying to tell us anything we don’t already know; he wants to help us Remember.

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Three days in New Orleans with Bill and Lisa. We stayed in a 2 bedroom, 2 bath house a block off Magazine Street and a few blocks from St. Charles. Gumbo, fried oysters, hush puppies, beignets, all of that. We went to Frenchman’s Street and had a good time bar-hopping (no drinking, no problem). The second night we (Lisa, that is) tracked down a really good singer (Myschia Lake) we’d heard the first night. Hanging out at Chickie Wah-Wah bar. The third night we went to a bar that Jean had been to a few years ago. There we were in the Bullet Sports Bar in the Treme’ – Rock and roll, black and white, young and old, good and good.

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I went to my internist today. At the beginning of the visit I said this to her:

I’m 73. I’ve lived longer than anyone ever in my family – partly because of the way I live and partly by luck.

I was married for 45 years to my high school sweetheart. She passed away almost three years ago. The grief was terrible. “It never occurred to me that you could love someone the same way after he was gone, that I would continue to feel such love and gratitude alongside the terrible sorrow, the grief so heavy that at times I shiver

and moan under the weight of it” (from When Breath Becomes Air). I know about this.

For the past year and a half I’ve been in a relationship with a remarkable woman in Berkeley, so I’m there more than here. I have a ticket to return to California next week. And we have tickets to India in January.

All this to say, I have a strong sense of my mortality and I’m intent on living as well as possible.

The internist responded to my situation and got a hurry

-up echocardiogram scheduled. The echo showed a need for further assessment, specifically a cardiac catheterization.

————–

On Friday morning at 0900, the cardiac clinic called to ask if I was coming to my appointment at 0920. This was the first I’d heard of the appointment. I said I could be there in about 40 minutes, but they were unwilling to do this (to my great irritation) and so scheduled me for an afternoon appointment, which was okay with me. When I got to the appointment, I learned

Leslie in the Circle of Friends

that the doctor’s name was Aslan ___.

About 15 years ago in a wilderness area of Big Bend National Park I had a very close encounter with a mountain lion. I had walked away from my campsite to pee and as I started to unzip, I heard a sound and looked up to see the cougar standing about 40 feet away looking at me with those great golden eyes (later, I paced it off; the animal really was that close). Feeling that I should be cool about the situation, I went ahead and unzipped and urinated, all the while talking to the cougar in what I hoped was a reassuring voice. It sat down and began licking its chest, but still looking at me. I zipped back up and turned and walked away – later to learn that you’re not supposed to turn your back on a mountain lion. This encounter had great significance to me. I

Band playing in the garage next to David’s house.

realized that this was my spirit animal.

And now, a doctor named lion (Aslan) was going to perform a cardiac catheterization on me. Talk about a feeling of confidence and synchronicity – glad I didn’t make it to the earlier appointment!

Jean flew in to be with me through the process. Jean and John and I went to UTSW.

On the day of the procedure they took me into the cath room (not quite an OR, but not your average procedure room, either). Everybody is gowned and

Jean and Kristina in Dallas.

masked and it seems serious. I was looking around wondering if this would be the last thing I saw. Someone asked me if there was any music I’d like to listen to. I said no, whatever the doctor liked was what I wanted. They said, oh, never mind, what do you like? I said I’d been listening to the Ramones, I Wanna be Well. They didn’t think they had any Ramones and then someone said, don’t they have a song called I Wanna be Sedated. So I sang part of Sedated to them – “20-20-24 hours to go, I wanna be sedated. Nothin’ to do, nowhere to go, I wanna be sedated.” We had a good time with that, though I can’t really sing like Joey. Then someone walked up to me and said, “I heard you want to be sedated.” I said, “Oh yeah.” And so she started the versed or fentanyl, whichever goes first. I woke up however long later – all was well – Jean was there – they had not needed to put in a stent. “Oh yeah, I wanna be well.”

Some of G-5 men’s Bible study group at Bryce’s ranch

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The endless summer: an endless summer is not something that just happens. It needs intention and focus and a high consciousness (like “I embrace your anger.”), and above all, Love.

—————

John and Sherry gave me a copy of Devotions (Patti Smith), one of a series of books on “Why I Write.” The first paragraph of this book sparked this…

Saturday at the Albany Bulb Landfill full of “outsider art”

When I was about 10 I had a vision of the suffering of the world (embodied in my own small suffering – though it didn’t seem small at the time).

When I was 21, home from the war in Vietnam, I made a commitment to myself to never waste my life (though I believe that nothing is something worth doing – Shpongle). And I had a vision that we all are one and took the bodhisattva vow. What was I to do? Leslie was already doing service. I had a groovy little store, The New Store, where I sold waterbeds, waterbed frames, shelves, tables – the store motto was “The New Store is a Wooden Ship.” Then I saw a way to integrate

At the Bulb

the visions and commitments. I went back to school for a year of prerequisites and then on to nursing school, worked as an RN, then graduate school, then hospice, refugees, education, nurse practitioner, primary care. I started writing in 1984 as a way to expand on the vision – healing the sick, relieving suffering (going back to the bodhisattva vow), working toward one world, and so on. Following are titles (pasted from c.v.) of some of what I wrote:

 

Books: Infectious and Tropical Diseases: A Handbook for Primary Care, Refugee and Immigrant Health, Terminal Illness: A Guide to Nursing Care.

Jean at the Bulb

Book chapters: Promoting Healthy Partnerships with Refugees and Immigrants, Culture and Spiritual Care at the End-of-Life, Spiritual Care in Terminal Illness, Anorexia and Cachexia, Six Stories, Promoting Healthy Partnerships with Refugees and Immigrants, Grief and Loss, Refugee and Immigrant Health, The Baylor Community Care Program, Grief, Refugee Health and Community Nursing, Cambodian Refugee Health Project.

Articles (in peer-reviewed journals such as the American Journal of Hospice and Palliative Care, American Academy of Nurse Practitioners, Cancer Nursing, etc. – with thanks to co-authors): Living as a refugee, Cultural issues in palliative care, Community health nursing: Where we are going and how to get there, Culture and the end of life: Major world religions, Culture and the end of life: Chinese, Infectious diseases of refugees and immigrants: Hookworm, Culture and the end of life: Nigerians, Infectious diseases of refugees and immigrants: Viral hemorrhagic fevers, Culture and the end of life: (Asian) Indian health beliefs and practices related to the end of life, Culture and the end of life: East African cultures-Part II, Sudan, Infectious diseases of refugees and immigrants: Giardiasis, Culture and the end of life: East African cultures-Part I, Somalia, Bioterrorism: Introduction and major agents, Infectious diseases of refugees and immigrants: Filariasis, Infectious diseases of refugees and immigrants: Echinococcosis (hydatid disease), Culture and the end of life: East African cultures-Part I, Sudan, Infectious diseases of refugees and immigrants: Ebola and Marburg hemorrhagic fevers, Infectious diseases of refugees and immigrants: Dengue fever, Infectious diseases of refugees and immigrants: Chagas’ disease, Infectious diseases of refugees and immigrants: Brucellosis, Culture and the end of life: East African cultures-Part I, Somali, Infectious diseases of refugees and immigrants: Ascaraisis, Infectious diseases of refugees and immigrants: Amebiasis, Infectious diseases of refugees and immigrants: Introduction, Culture and the end of life: Hispanic cultures (Mexican-Americans), Culture and the end of life: Cambodians and Laotians, Culture and the end of life: Introduction (to a series), Vietnamese health beliefs and practices related to the end of life, Metastatic spread and common symptoms: Pancreatic, prostate, stomach, and uterine cancers, Metastatic spread and common symptoms: Non-Hodgkin’s lymphoma, oral cavity, and ovarian cancers, Metastatic spread and common symptoms: Lung cancer, melanoma, and multiple myeloma, Metastatic spread and common symptoms: Renal cancer, leukemia, and hepatic cancer, Metastatic spread and common symptoms: Breast cancer, colorectal cancer, and esophageal cancer, Laotian health care beliefs and practices, Metastatic spread and common symptoms: Introduction, bladder cancer, and brain cancer, Palliative care for respiratory problems in terminal illness, Cancer detection activities coordinated by nursing students in community health, Managing chronic pain in patients with advanced disease and substance-related disorders, Islamic cultures: Health care beliefs and practices, Palliative care for patients with acquired immunodeficiency disorder, Spiritual care in terminal illness: Practical applications, Community health clinical experiences: The primary care setting, Teaching strategies for operationalizing nursing’s agenda for health care reform, Preparing for death: A Christian guide for individuals and families, Health services for refugees in countries of second asylum, Writing successful grant proposals for services to clients, Addressing the needs of underserved populations, Basic counseling skills: the refugee client. Cambodian refugee health care beliefs and practices, The dying process.