Preserves 2019

Preserves 2019

Updated recipes for cherry, peach, strawberry, and pear preserves; orange marmalade.

General concepts

  • Be careful! You’re dealing with a lot of hot materials. Rubber-tipped tongs are a real good idea.
  • Sterilize jars and utensils in boiling water to cover for 15 minutes. Sterilize everything you’ll use.
  • All these recipes have less sugar than original recipe.
  • I’ve started cooking fruit and juice until the fruit is done (20-30 minutes), removing the fruit and app

    Strawberry and pear preserves backed by cyprus vine (iDallas)

    ortioning it in the sterilized jars, then reducing the syrup. In some cases I add pectin to syrup to thicken. (See directions inside pectin box.) When syrup desired consistency pour over fruit, affix top and sterilize.

  • Setting point is determined by putting a couple of plates into the fridge for ~15 minutes. Put a spoonful of preserves or marmalade onto a plate and back into fridge for 5 minutes. Then push the edge of preserves or marmalade with finger. Wrinkly = set.

You are really in for a treat!

Cherry preserves

Pear preserves

4 # cherries, pitted
3 + cups sugar
Juice 2 lemons
Eight 8 oz (or four 16 oz) Ball jars sterilized (boil jars, tops, utensils for 15 minutes)

Directions
Pit cherries – important to pay attention here
Put in pot, stir in lemon juice and sugar, let sit 1+ hour
Cook for about 20 minutes – until cherries are soft/firm
Cherries to jars, lids on tight
Reduce syrup
Add syrup to jars of cherries – lids on tight
Submerge in boiling water for 15 minutes

(I filled 2 16 oz jars, then added pectin to remaining syrup for 2 jars. Those with pectin were still runny, so needed more pectin)

Peach Preserves

Juice from 4 large lemons (approximately 8 tbsp)
6 lbs fresh peaches, firm, not hard or soft
2 1/2 – 3 1/2 cups granulated sugar (the amount used depends on how sweet peaches are)
Eight 8-oz or four 16 oz glass jelly jars – Sterilized (boil 15 minutes)

Directions

From left: peach, cherry, chutney (Jean’s), pear, nectarine

Pour the lemon juice into a large, heavy bottomed sauce pan. Peel, pit and chop the peaches into small, bite-size chunks. Add the peaches to the lemon juice as you chop, stirring with each addition to coat the peaches in the lemon juice to prevent browning.

Pour the sugar over the peaches and stir gently to coat the peaches in the sugar. Let the mixture sit at room temperature for 1 hour.

Bring to a boil on medium heat, stirring occasionally. Check the fruit in about 20 minutes. When done at 20-30 minutes, place fruit in sterilized jars and reduce the syrup to thicker consistency (takes about one hour).

Add syrup to jars. Lids on tight.

Put jars covered in boiling water for 15 minutes

Strawberry Preserves 

Recipe from Martha Stewart, with adjusted sugar

Super-sweet berries are not necessary. The main thing is good flavor. The sugar takes care of the sweetness.

2 pounds strawberries, hulled
11/2 tablespoons freshly squeezed lemon juice
1.5-2 cups sugar

Directions

Put strawberries and lemon juice in a large saucepan. Cook, stirring occasionally, over low heat until juices are released, about 40 minutes. Stir in sugar.

Sterilizing

Can take berries out, put in jars, then cook the syrup down and pour over berries. This will result in firmer berries.

Bring to a boil over medium heat. Cook, stirring occasionally, until mixture registers 210 degrees on a candy thermometer, about 15 minutes. Original recipe says “Let cool completely; skim foam from surface with a spoon. Preserves can be refrigerated in an airtight container, up to 2 months.” I pour them up hot, jars in boiling water for 15 minutes.

Amber Pear Preserves

From COOKS.COM

Next street over, this week

This recipe is about 75 years old.

4 C under-ripe pears (I use 4#)
3 C sugar (try a little less – with 4# pears, I used <4# sugar)
1 1/2 tbsp. lemon juice (3 T if increasing as above)

Directions

Peel and chop under-ripe pears, stirring them into lemon juice as you cut them up to help retain color.

Stir in sugar

Let stand overnight with sugarand lemon juice.

Stir then put on low fire and let simmer until pears have turned amber color, about 2 hours (BUT do not over-cook). Go by color. Stir to be sure it isn’t sticking. Pour in prepared jars and seal. Use all juice.

Boiling water bath for 15 minutes.

Orange Marmalade

From About British Foods

Seville oranges are smaller and not as “pretty” as the oranges most often seen in stores. But they are the right oranges (bitter) for this recipe. Usually available December-February.

Need ~12” square of muslin, large non-reactive stock pot with 4 liters water, sterilized jars.
5# Seville oranges
2 large or 3 small, unwaxed lemons
5# sugar (original recipe calls for a little more)
4 liters water in a large pot

Strips of orange peel

Directions

Halve the oranges and lemons and juice them, saving pips and peel.

Add juice to water.

Put the pips and rubble onto the muslin, tie it off, and put into the water.

Pull the membranes out of the oranges (reserving the pith and peel) and discard. I think the membranes add a stronger bitterness.

Cut orange and lemon peel into strips 1/4” wide. If too thin they will dissolve.

Put into water. Bring to boil, then heat, and bring to boil. Boil for about 20 minutes, removing any scum – until setting point* is reached. When setting point reached, turn off heat and let sit for 20 minutes.

Pour into sterilized jars and seal.

Fog rolling in at “Albany Bulb” – a reclaimed industrial dump – a magical place.

The original recipe doesn’t call for a 15 minute boiling water bath, but I think it’s a good idea.

*Setting point is determined by putting a couple plates into the fridge for ~15 minutes. Put a spoonful of preserves or marmalade onto a plate and back into fridge for 5 minutes. Then push the edge of preserves or marmalade with finger. Wrinkly = set

Lives connected

Sometime around 1982, when Leslie and I were working as volunteers in the Cambodian refugee neighborhood in Dallas, one of the families we were involved with asked us to look in on a new family. The new family lived in one of the one-bedroom upstairs corner apartments at 4400 San Jacinto. There was a mother and father and two children. They had almost nothing. The weather was cold and they had a couple of blankets and a few cooking things and a little rice. The father was sick. It was desperate.

We got them some blankets and warm clothes and food and medical care and so on. We started taking the father to Parkland Hospital, but his illness was not treatable and all they really did was track his last months. Maybe 6-12 months(?) later he was having a bad day and I took him to the Parkland ER. He was on a gurney in one of the ER halls. I had to leave for a while and when I came back a little while later he had passed.

Funeral ceremony for Tep Kim Suar in his family’s apartment at 4400 San Jacinto

When I called his completely uninvolved sponsor to get money for his funeral, the director said, “We can go maybe $200.” I didn’t give the appropriate response (…) and went and got the money. I recall that the city wanted his body to be taken away quickly, but we wouldn’t let them take him and there was a ceremony in the apartment with the body present. Neighbors and others got the money together for necessary services and he was buried or maybe cremated at Sparkman-Hillcrest.

His daughter, Sue did well in school and so did his son until he had a health event that left him severely impaired. His daughter met a young American man, Jimmie. He had come from a difficult background, but then so had she, in a different way. They married and as time passed, they each showed themselves to be people of great quality… true… decent… caring… and competent in their work and in their family. In time we saw less of one another.

In December 2015 I got a call from Jimmie. He wanted me to come talk with Keo, a Cambodian woman who had grown up with Sue and who had actually lived with Leslie and me for a few months when David was a baby. Keo was now in the hospital with advanced breast cancer. The idea was that I would convince her to have the cancer treated as one of the doctors involved in her care wanted. She wanted no part of it and the fact was, treatment was a very long shot with certain concomitant suffering.

I supported Keo in her wishes and Jimmie was graceful in accepting her decision. He and Sue were involved in Keo’s last days, as was I. When I gave the eulogy at Keo’s funeral I named Jimmie, Sue, and Sue’s Mom as true stalwarts in her last weeks.

About a year ago, Jimmie was diagnosed with a glioblastoma. Today, he passed away in the VITAS inpatient hospice unit. I think he was in his early 40s. Well done, good and faithful servant.

The old crew passing: Leslie, Sang Van, Khuon Voeuth, Keo, Phana, Jimmie.

——————

When you find out who you are 
(From The Incredible String Band)

When you find out who you are
Beautiful beyond your dreams

Change the world by the things you say
By the things you Love

Oh how many shining hearts
With love have guided me

We used to speak of that ocean deep
How little words can say

It’s better now to ask your friend
What makes him sad today

Make your own dreams come true
Make it come true

 

Effie, life, hope at the end of life, Jean’s friend, a Curse, Hi Tim!, clothed in strength and dignity

Two years ago with Melvin and friends early Sunday morning after all-night party near Austin – dancing beneath the diamond sky.

(Random thoughts and random photos.)

For many years my Mom invited a former neighbor for Christmas dinner. She was very old and for several reasons had not aged well. One year I went to her apartment in a retirement home to bring her to my Mom’s home. I was kind of standing around inside, waiting, and I saw an old-timey photograph of a beautiful young woman – one of those old kind of sepia, soft edges photos and she was so beautiful. I asked, “Effie, who was that?” “Oh honey,” she said. “That’s me.”

____________

When I was working in hospice I would approach my patients from the perspective of first, any pressing problems or issues and second, as more than the person lying there in bed, so sick, dying. I would think of my patients as people with a lifetime of experiences – a little girl in first grade; a teenager, falling in love; a young man going off to war; a wife, a husband, a parent, a grandparent, a widow; someone who knew happiness, disappointment, love, loss, grief, just all the fullness and experiences of our lives. And then kind of loop that around to include in the now.

Sing our songs. We all want to sing our songs.

Given some openings and the ability, people would talk about their lives, how they met their spouse, their courtship, their children, their regrets, their hopes, their dreams realized and unrealized. Sometimes even their hopes for their (very short) future. Oh, I’ve heard some love stories!

What do people hope for at the end of life? First and foremost, people hope to be healed – and when there is no hope to heal the body, they/we hope for our hearts to be healed. For relationships to be healed. To be with loved ones. Sometimes there are words unspoken that need to be spoken. And it’s not always words of love and not always words of forgiveness. Because healing requires the truth – good and bad – the truth. We want to sing our song of our life.

And in the end, we can forgive ourselves.

__________________

From the deck

Someone Jean had been in a relationship with long ago died last week. Fell down dead. Like Jean’s husband had. It hit her pretty hard. What a time of life this is! We’re all pretty much at the edge. Let’s enjoy it while we can.

Here’s to our youth, our hopes and dreams, and to our future.

__________________

Leslie and I were in a car with some other people, pretty crowded, on about a one hour drive. For no apparent reason she was being hostile toward a man in the car. He wasn’t someone I particularly cared for, but I thought she was being a little extreme, putting the Evil Eye on him, truly. Later I asked her what was going on and she told me she didn’t like the man. I asked her if she had to be so overt. I remember that she just looked at me.

Some years later I learned that that man had repeatedly molested someone I knew when she was a little girl. I learned it from the person he had molested. Leslie did not know about this – but she knew something and it wasn’t good.

He broke the little girl. She was broken her entire life. You broke her, God-damn you.

_________________

My last day of work and my last patient – who I first met years before in a desolate apartment when she had just come to the US. Frightened, hungry, overwhelmed. She’s much better now.

Through Facebook I’m in touch with a high school friend, Tim. We played golf together, went to the same parties, dated two girls (Claire and Martha) together from another school, and after high school we both went into the Marine Corps. The last time we talked we discovered that we had each had a spiritual awakening and had both ended up doing related work – he in substance abuse counseling and I in nursing.

And now Tim is posting photos of the Florida beach/ocean where he lives and I’m posting photos of the San Francisco Bay where I live – sunrises and sunsets coast to coast.

_________________

What a fierce time of life this is. To some, we probably look like just more old people. That’s what we are, except no just to it. We loved, we love, we fought in wars, we stopped wars, we danced beneath the diamond sky, we were/we are beautiful, we were/we are hot, we created/we create, we took risks, we grieved; and we’re in challenging places and times. We’re close to death or worse. No one gets out alive. See us love, see us touching,

In our tent in Wyoming.

see us slow-walking across the street, see us in our beauty at the end of life.

Van Morrison: And we’ll walk down the Avenue again; And we’ll walk down the avenue and we’ll smile; And we’ll say, “Baby, ain’t it all worthwhile.”

Proverbs 31:25:

She is clothed with strength and dignity,
and she laughs without fear of the future.

Big Sur – 2019

Road into the canyon – up the canyon, into the mist, into the redwoods

It has been a remarkable few weeks: LaHonda/Santa Cruz Mountains, Mendocino, Orr Hot Springs, Bolinas, Berkeley, and now Big Sur…

Big Sur: Highway 1 follows the coast, past Santa Cruz, past Monterey, past Carmel-by-the-Sea, into the whole of Big Sur, past where David’s ashes were placed at Esalen, past where we cried as we first drove this road together three years ago, where the mighty Pacific Ocean stretches across 1000s of miles to Asia, turn off on an unmarked road, through a gate and follow a dirt road into a canyon in the Ventana Wilderness and in a few miles a pull-off. We park and walk across a wood foot-bridge up a path to a traditional wood Haida cabin on a knoll in the redwoods and here are the people we’ll spend the next few days with.

Eight paces from our bedroom/ sleeping platform

Hang out at the table cut many years ago from a huge redwood, then walk down the hill and carry our things along a narrow rocky path beside the rushing water and tiny orchids growing alongside the path and into the clearing where our sleeping platform awaits. We set up our bed – pads, air mattress, sleeping bag with sheet and fleece inside, pillows (Oh, we’ll sleep in style). All under the stars, eight paces from the river.

There is no electricity and no wifi – it’s a digital cleanse for us with no electronically transmitted information, music, or anything else as long as we’re here. But there is hot water and up the hill a white ceramic throne waits among the trees.

Jean on the rocky trail to our bedroom

Time standing still. Talking, art, life, cherries, wine, cheese, herb, the wind in the trees and sometimes sunlight filtering through and high above we can see the fog moving in. In an incredible happenstance, one of our hosts, Steve was in Vietnam at almost exactly the same place and time as I… along la Rue Sans Joie (the Street Without Joy – named by French Legionnaires), where Bernard Fall was killed in 1967, where many from both sides died, and now here we are in this redwood forest. Everyone here has lost a loved one – parent at a young age or spouse. We don’t talk much of

In the morning

the pain, but those who passed on are very much with us.

A family gathering in the glade where the dining table sits (thank you for including us!), a teacher, a healer, an artist, an environmentalist, a gardener, a grower, a calm center, a child, a black lab. Then to a campfire, cobbler, s’mores, then slowly along the rocky path to our bed.

Gin, Susan, Jean, Steve

The first night we slept soooo well, so warm, tangled up in soft and love and in the morning I walked up the hill and made coffee for Jean and me and Susan was there, making coffee for Steve and herself. Our joyful job. Back down the hill with coffee to the bed, talking, seeing, hearing, feeling. We talked of places so good for sleeping. For me, this place, the Temple, home on Reiger, my campsite at timberline in Maroon Bells going in to the Four Pass Loop, Dragon Hostel in Hong Kong, Big Bend in a sleet storm, Ana Lisa Hedstrom’s studio on a cold, rainy night.

Breakfast was the usual fruit and yogurt and bread, coffee, talking. Steve’s family left, so it was just four of us. We walked ¼ mile up a path to the “common cabin” (shared with two other families, neither of whom were there) and Jean showered while Susan and I walked along an old trail deeper into the forest where redwood sorrel was like soft green cushions

growing out of 1000 year old mulch. The forest was still, beautiful, and Susan is a quiet, careful walker. We talked of beauty and life. After we walked I stayed behind at the common cabin and showered…

——————

Sing the first three lines with me:

I’ve got a feeling
A feeling deep inside
Oh yeah

He walked on the soft ground around to the front of the cabin and stood naked on the deck, lifting up his arms and soul to the redwoods to the sky to the fog to the sun to the river running by. Give thanks.

Sorrowing for his country, for the moral collapse of what was once humanity’s greatest hope.

Where now lies are virtue and Jesus is whored out to the gods of greed.

———————

Fawn up the street in Berkeley – still with spots

A still afternoon, easy, comfortable. Dinner, campfire. Back along the rocky path to our sleeping bag. And in a perfect summary of our life together, Jean woke me up about 3 am and said, “It’s getting wet” – the fog so heavy and right here we could actually feel the tiny droplets of water kind of stinging our faces. Pull the ground cover tarp up over us and burrow down deeper in the sleeping bag. Warm, dry, except a little damp around our heads. Friends, it truly doesn’t get any better.

In the morning we all packed up and headed out – Steve and Susan to the beautiful valley and home where they live and Jean and I to the magic of Berkeley. Along the way we stopped at Nepenthe, high above the Pacific, then on to the Promise of Berkeley and our happy home.

Sunset from the deck the first evening home

As I write, this text comes in from Jean: “Stuck in traffic. Big demonstration/anti-Trump kids in cages protest.” The Promise of Berkeley!

Progressive dementia: addendum to advance directive

This document is intended as an addendum to one’s advanced directive. It will be repetitive to some extent in terms of an existing directive, but there is some unique material and it adds detail to some issues, e.g., what medications to continue and what medications to discontinue. It can easily be modified to include person-specific wants such as being given alcohol or cannabis (when and how much) throughout the illness.

In a complex healthcare system, with so many players involved, it’s easy for treatment (especially emergency or from an unfamiliar provider) to spiral out of control with tests leading to decisions and treatments and subsequent tests and more treatments, and so on. The core idea is to maintain control over one’s life and death – because someone will control the arc of our illness, and for most of us, it’s better to control (as much as is possible) our own destiny.

Happy Trails to us all!

——————-

There are several things I fear, among them dementia, CVA, and neuromuscular diseases such as ALS. None of these seem imminent, but one never knows!

If I am diagnosed with dementia not explained by delirium or major psychiatric disorder, my Advance Directives and/or Living Will will reflect the following:

Mild dementia

If I am mildly demented as discussed/defined below, I want my agent (—-) to establish a DNR status for me.

Mild dementia discussion/definition: objective evidence of low performance in more than one cognitive domain that is greater than expected for my age and educational background; significant interference with the ability to function at work or at usual activities, but still able to carry out basic activities of daily living (bathing, dressing, personal hygiene) and participate in some pastimes, chores, and social functions; evidence of significant difficulties in daily life that interfere with independence (Knopman and Petersen, 2014).

Note that mild dementia is not the same as mild cognitive impairment.

Moderate dementia

If I am moderately demented as discussed/defined below, I want my agent to discontinue routine medications EXCEPT medications improving comfort and quality of life. Currently, medications to continue if I am moderately demented include —-. Medications such as cholinesterase inhibitors may be given to improve confusion, communication, or memory. Currently, medications to discontinue would include —-.

If I am moderately demented I want my agent to discontinue routine doctor or NP visits, antibiotics for infections, and all life-prolonging interventions.

As a general rule in this and other end-of-life health matters, if I am experiencing agitation or increased anxiety, I would rather be sedated and not distressed than alert and distressed. Cannabis should be given for a good trial for agitation or increased anxiety before using pharmaceutical medications.

Unless I explicitly request any changes, I want to be given cannabis daily according to a schedule that I will give. Vape or pipe is by far the preferred route. If smoking is not possible, cannabis should be given via oral/edible route.

Moderate dementia discussion/definition: objective evidence of difficulty concentrating; decreased memory of recent events; increased difficulty managing finances or traveling alone to new locations; increased difficulty completing complex tasks; withdrawal from friends or family because of difficult socialization; require assistance in bathing, toileting, or dressing (Dementia Care Central, 2018).

Severe dementia

At the first signs of severe dementia as discussed/defined below, I want to be admitted to a hospice or palliative care program at the earliest opportunity. I want a plate of food to be placed in front of me at mealtimes, but manual or parenteral feeding should be discontinued unless I explicitly request it. No intravenous fluids are to be given. I want to be allowed a natural decline and death (Kemp, 1995).

IF I am able to swallow, medications should be continued as discussed under moderate dementia.

Agitation or increased anxiety should receive ongoing medical attention. I would rather be sedated and not distressed than alert and distressed.

I want to be given cannabis daily according to the schedule I will give. Vape or pipe is the preferred route, though oral may be necessary.

Severe dementia discussion/definition: incontinent of stool in the absence of GI infection, unable to walk alone in the absence of injury or disease unrelated to dementia, have speech limited to a few words/day, experience delusions and/or hallucinations, unable to recognize my immediate family.

Thank you and blessings upon all who help me on my journey.

References

Dementia Care Central (2018). Global deterioration scale. Online. https://www.dementiacarecentral.com/aboutdementia/facts/stages/

Harrington, S. (2018). At Peace. Grand Central.

Kemp, C.E. (1995). Terminal illness: a guide to nursing care (2nd ed.). Lippincott.

Knopman, D.S. and Petersen, R.C. (2014). Mild cognitive impairment and mild dementia: a clinical perspective. Mayo Clinic Proceedings, 89(10), 1452-1459.

 

And it feels so good, and it feels so good

In a meadow, 2016

Three years ago, right before our Endless Summer began we went from Aptos (near Santa Cruz) to La Honda (where the Merry Pranksters had a scene). On the way we stopped in the Coastal Range on the side of a mountain and walked “in a green field, in a meadow, through the buttercups, in the summertime” (from Take Me Back by Van Morrison).

The moment the Endless Summer began in Mendocino in May 2016

Sometime around February 2019 we talked about doing that same thing as a goal in the process of going through the physical challenges we were going through. There was a time (December, January, February, March) when there was no way we could have walked together in a green field like that.

Take Me Back is one of “our songs” – along with The Healing Has Begun and Sweet Thing.

And so last week we went to La Honda. We walked in the green meadow, in the flowers, down an avenue of trees (big trees!), in the misty morning, We took a hot tub (with the Coastal Range spread out before us) with Bill and Lisa, had dinner with Larry and Judith and Bill and Lisa, and spent the night on the floor of Lisa’s studio where early in our relationship we had one of the best nights of our lives – rainy cold night, fire in the pot-belly stove, air mattress leaking, so warm and beautiful…

Down an avenue of trees, 2019

Below are some words from Take Me Back. In this past week we went back, back to when we understood… now, understanding, we’re back, living like this and for the first time in months we…

We didn’t have no worries,
We didn’t have no care.

And yet

In the most difficult times,
In the dark hours

We felt good about life,
About one another – about our loving life
Never losing focus

It was a good hike to and from this beach. Like the beach where the Endless Summer began. No other people, 2019

Van (Here is YouTube of Take Me Back – opens in separate window):

Take me… way, way back, way back
When you walked, in a green field, in a green meadow
Down an avenue of trees
On a, on a golden summer
And the sky was blue
And you didn’t have no worries, you didn’t have no care

You were walking in a green field
In a meadow, through the buttercups, in the summertime
And you looked way out over, way out
Way out over the city and the water
And it feels so good, and it feels so good
And you keep on walking

And the music on the radio, and the music on World One radio

In a meadow, 2019

Has so much soul, has so much soul
And you listen, in the night time
While we’re still and quiet
And you look out on the water
And the big ships, and the big boats
Came on sailing by, by, by, by

And you felt so good, and I felt so good
Take me back, there, take me way back there
Take me back, take me back, take me back
Take me way, way, way back, way back
To when, when I understood
When I understood the light, when I understood the light
In the golden afternoon, in the golden afternoon
In the golden afternoon, in the golden afternoon

Our little yurt in the forest, 2019

Take me back, take me back, take me back
Take me way, way, way, way, way, way, way
Back when I, when I understood, when I understood, yeah
Oh, ah, take me way back, when, when, when, when, when, when
When, when, when, when, when, when, when
I was walking down the
Walking down the street and
It didn’t matter
Cause everything felt, everything felt, everything felt
Everything felt, everything felt, everything felt, everything felt
Everything felt, 

In the rhododendron forest at Mendocino Botanical Gardens, 2019

everything felt, everything felt so right, ha!
And so good

Everything felt, so right, and so good
Everything felt, so right, and so good
Everything felt, so right, and so good, ah!
Everything felt, so right, and so good
Everything felt, so right, and so good, so good
In the eternal now, in the eternal moment
In the eternal now, in the eternal moment
In the eternal now

Bed and breakfast

________________
Back to Berkeley for a few days and then drive to Mendocino – north on 101, through the hills and vineyards, west on 258 through Navarro Redwoods State Park where we turned off on an unmarked road and walked for a bit among the redwoods and then up to Highway 1 to Albion and winding up along the coastal headlands, and there’s Mendocino, from a distance looking like I imagine old New England looked like with beautiful old white buildings, and up close the gardens are pure lush California!

We stayed for two nights at the McCallum House, a nice bed and breakfast a short block from the main street. We walked the headlands, we walked in a rhododendron forest, we sat on the same bench above the crashing surf where we sat three years ago, we laid on a sarong on a beach in a golden

Inside our yurt

afternoon with waves rolling in and hissing back out, we hiked down to another completely deserted beach in a cove and lay alone with just the sky and sea and rocks and surf and sand and sea gulls soaring (this was exactly how the Endless Summer began). The hike back up from the beach was steep and by the time we got back to the trailhead, we knew this hike was a measure of where we are in the process of healing – and it’s a good place.

From Mendocino we took a winding and sometimes rough road to Orr Hot Springs. Along the way we walked in a redwood forest – the only people there, walking down an avenue of trees along a stream bubbling along beside the flat(!) trail. A few miles down the road we got to Orr. We checked in, put our stuff in a cart and hauled it up a path and then carried it  up two flights of stairs to our fine little yurt in the forest. No locks on the doors of the rooms at this place, except when you’re in a room you can latch the door.

Jean – Mendocino headlands, 2019

The vibe at the pools and elsewhere was so good. Good mix of ages and orientations. It felt sexy to me, but there was no acting out. The hot pools are small, but Orr limits the number of day users and campers, so it was never crowded. Everyone has to bring and prepare their own food, so, as so often before, there we were in a kitchen full of nice people cooking/cleaning up whatever – a scene I’ve always enjoyed. There was one little grove where smoking was allowed. The smoke of choice was grown right there in Humboldt county.

Front garden

We were only at Orr for an afternoon, night, and into the next afternoon. It was beautiful, peaceful, quiet (no wifi), a loving and affirming place for us. Berkeley in about three hours. Look at those sweet peas! Pick some strawberries. We’re home.

Agape Clinic – Recollections

Agape is the Christian concept of selfless, unconditional love. It is a three syllable word pronounced ah-GAH-peh. The Agape Clinic manifested the reality of that love beginning in the early 1980s. Photo: outreach in a community garden

From 1983-2000 I was running a “Community Care” health program (not connected to Agape) that included district health services in a refugee community and barrio, primary care provided by volunteer physicians in a police “storefront” and a church, and immunizations through the county health department. District health originated in the UK and to us basically meant that we took responsibility for the health of people is a defined “district” in Old East Dallas. This was under the aegis of first, Texas Woman’s University and later Baylor University School of Nursing and through cooperative relationships with other organizations such as Parkland Hospital, East Dallas Health Center, Dallas Police Department, Church Health Ministries, and other organizations. The students were central to providing all aspects of community and family and individual care. Semester after semester they did a brilliant job in the hard work of delivering quality health care and practicing loving kindness, justice and mercy in the slums.

Leslie Kemp started working with the students and me around 1995. Her role initially was social work and organizing the business aspects of our efforts. Photo: With Megan and Joe – outstanding students

A series of circumstances led to us losing our clinic space in the fall of 2000, so in effect we were “homeless.” I talked to Dale McEowen, one of the people involved with the Agape Clinic, about sharing Agape’s space in Grace United Methodist Church. The following was written shortly after the conversation with Dale:

Dale said, “I’ve suggested several times that you come over here.” I said, “I believe you – I never heard it or I just wasn’t ready.” I remember we had all our medicine in 2-3 drawers of the big brown filing cabinet and when I told Bobbie (the clinic founder and medical director) that we’d keep ours in there she said, “no, just put it in with ours.” They had 100s of times more medications than we, so it was an extraordinarily generous thing for her to say. As he had done several times before, Martin Hironaga helped move the clinic.

When we moved into Agape I felt like we’d come home.

When we started at Agape, the clinic was open one day/week on Saturdays for primary medical care and childhood immunizations. At first our presence added a second day of services and outreach and follow-up to care. Later, we were able to further expand services. For the students and me the association with Agape meant that we had a home with far more resources and an opportunity to serve more people in more ways than previously. Photo left: patients waiting to get in to the clinic.

There was good energy/ synergy between the original Agape Clinic people and the new people and resources. I started writing grant proposals – later, Leslie wrote proposals and hosted foundation visitors – and the clinic received funding from a number of foundations (Communities, Clements, Aetna, Bob Smith, First Presbyterian, Dallas Women’s Foundation, AMA Foundation, Lakewood Service League, and others), as well as churches (notably Highland Park United Methodist and First Presbyterian), and individuals. Through this wonderful energy the Agape Clinic evolved into a comprehensive community health provider with four days of services each week provided by volunteers, paid staff, and students. Services included:

  • Primary care for acute illness provided by physicians, nurse practitioners, and medical and NP students (the foundational care from the beginning of Agape). Photo: in the pharmacy (volunteer RN/former student, nurse practitioner, physician)
  • Specialty care, including psychiatry, dermatology, gynecology, pediatrics, and asthma and immunology also provided by physicians and nurse practitioners with expertise in their respective fields.
  • Treatment, teaching, and follow-up for patients with chronic illness delivered as above except teaching and follow-up were through nursing students. Among community clinics in the North Texas area, care for patients with chronic illness was unique to Agape and the follow-up (home visits for assessment and teaching) was unique among community clinics everywhere.
  • Medicine provided in-house through donations, samples, and from Blessings International, a missions supply group.
  • Social work provided by the Agape social worker (Leslie), promotoras (lay health promoters, primarily Lupe Springer and Nora Avila), Diane from UTA, and students in social work and nursing.
  • Spiritual care given by volunteer clergy, Common Grace Ministries, promotoras, and students.
  • Community education provided by nursing and social work students in cooperation with promotoras.
  • Health screening delivered on a daily basis in the clinic by students,and in health screening events supported by the Komen Foundation, Parkland, Dallas County Health Department, DISD, and other organizations.
  • Vaccinations were for many years available on Saturdays in the Dallas area only at Agape through the work of Betty Lou Gary and her volunteer crew. Weekday vaccinations were provided by the County Health Department and students. Photo above: volunteer helping a patient with hospital bill. Photo below: The door into the exam room area. Larry, a massage therapist giving massage to a patient. He came every week.
  • Special projects such as Creaciones de Fe (Creations of Faith, a support and community education group for Latin women) and the Jonathan’s Place effort, in which we provided intake physical exams and treatment of illnesses for children who had been removed from their families and placed in a shelter for abused and neglected children. Creaciones ran about five years under the guidance of Lupe and the Jonathan’s Place effort lasted about 1½ years (average ~7 children/week).
  • Immigrant health was foundational at Agape and was expanded to include refugee communities, including Middle Eastern (especially Kurds), East African, Burmese, Cambodian, and others. The Dallas County Health Department, Parkland, Baylor, and UT Arlington were central to refugee health at Agape.
  • Service learning site with students from Baylor, UTSW Medical School, UTA. TWU, and others.

Paid staff included a clinic director, promotoras, and nurse practitioners. We were seriously services-oriented, strong on fundraising, and light on administration. Photo: exam.

Leslie Kemp was the original clinic social worker. Her philosophy of care was to always solve the problem and never simply refer patients elsewhere. She made home visits as needed and she also ran the front desk, inviting each person who came into the clinic to sit down next to her (vs. the patient standing in front of her desk or sitting across the desk) as she completed intake/registration, and identified problems that were not readily apparent. She always had 1-2 students working with her/learning from her in the clinic. As time passed she took on more administrative work and eventually began working as clinic director. The director position was a sacrifice for Leslie as she far preferred working directly with patients and families. She began working with foundations and writing grant proposals along with administrative work and still seeing patients. When Leslie left the clinic she left behind a lean services-oriented organization in which everyone saw patients. We had an excellent reputation in the community (among healthcare providers, foundations, other organizations, and patients and families) and a large funding surplus. Photo: Leslie on the phone, with Maria and Luvia, the translator and her baby, the patient, and in the foreground Roxanne and Lupe.

At Agape we served the uninsured, the working poor, the people who process the chicken we eat, who mow our lawns, who clean our offices and hospital rooms – we served the people who cannot get Medicaid, who cannot access services at Parkland or Project Access or Homes or anywhere else. That service is our expression of the highest love we can be – Agape.

Afterward

Reflecting on the above, one thing that stands out is the collective nature of our work. I remember Meg Kaufman, the clinic psychiatrist saying something about “this collective” and I said, yeah, that’s right. We had so many volunteers and partners, each one doing their thing toward the common good.

How did this happen? Agape was a place (and a state of mind) in which people could spread their wings. This was due, first and foremost to Bobbie Baxter, the founder and Medical Director. She did quality work and was willing for others who did quality work to spread their wings. I was the same way. So was Leslie. We were unafraid; we were True Believers.

And, everything we did, we did for patients and community. And we knew what we were doing. And we abhorred meetings. As a consequence, people wanted to work there as volunteers, students, and community partners.

Following The Dream.

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Volunteers included high school students, lay people from the community, college students, retirees (including WWII vets!), doctors, nurses, social workers, former patients, chaplains, and others.

Community partners I can think of are Jonathan’s Place, DISD, Dallas Police, Common Grace Ministries, Baylor University, University of Texas, Texas Woman’s University, UT Southwestern Medical School, Dallas Concilio, Highland Park UMC, HPUMC Cornerstone Congregation, Grace UMC, First Presbyterian, Dallas Women’s Foundation, Dallas County Medical Society, LabCorps, SMU, Dallas Theological Seminary, Dallas County Health Department, Parkland Hospital, and quite a few foundations and individual donors.

All working cooperatively, collectively to heal the sick.

War Stories: The Bells of Hell and weird shit (Paint it Black, Lang Vei, etc.)

Gate in Hue

The photographs are all (except for one) from modern-day Vietnam. I took them on trips 2005-2015. My sense is that now most everybody there is looking forward, not back. At times, while I was in-country in 1966-67 I would think how the people there surely just wanted to live their lives – grow some food, fall in love, make babies – just living.

Vietnam is a beautiful country.

This post is a partial answer to the old psychotherapy question: what do you do when you feel anxious? One thing I do is to write. I write at other times as well, of course. This post is a monument to spending most of the day in the waiting room of the Kaiser Cardiac Procedures Unit. Everything turned out well, but you know, these places are worry-worthy.

The Bells of Hell was an English WWI ditty – the irony of doomed youth.

The Bells of Hell go ting-a-ling-a-ling
For thee but not for me:
For me the angels sing-a-ling-a-ling,
They’ve got the goods for me.
Oh! Death, where is thy sting-a-ling-a-ling?
Oh! Grave, thy victory?

The Bells of Hell go ting-a-ling-a-ling
For thee but not for me.

Weird shit

Paint it Black: For my last 5-6 months in Vietnam

At market in Hanoi, 2010

(out of 13 months and two days in-country) I was assigned to a “psychological operations” (psyops) unit. Psyops was a US Army unit with Marines like me assigned to work in it so that the Marine units could relate to what the psyops team was doing. My job was to go on operations with Marine Corps units, mostly at theDMZ. The team was one Marine, one soldier, and one Vietnamese translator. We carried big speakers, power units, and a tape player.

The idea was that when a unit dug in for the night, we would play Buddhist funeral music, Vietnamese songs

Beautiful Hue, on Perfume River, 2005

of love and nostalgia, and tapes exhorting the other guys (usually North Vietnamese Army units) to give up. The translator would also talk to the NVA over the loud-speakers, telling them their cause was hopeless, they were all going to die, their families were so sad, so on and so forth. Come to us. You’ll be greeted with open arms – Chieu Hoi, or something like that.

We would set up the speakers in trees in front of where the troops were dug in and crawl back to the line and start

Rainy afternoon in Saigon, about 2012

the noise. The officers and NCOs hated us as they were busy leading men in war; the troops didn’t think too highly of us either as we often drew fire. But the troops enjoyed the end of the show when we played music from the Got Live Rolling Stones album – Paint it Black or Have You Seen Your Mother, Baby Standing in the Shadows and so on. Of course this drove the officers and staff NCOs crazy(er). They weren’t ready for a rock n’ roll war.

I would always hook up with a machine gun team somewhere on the line, because guns were what I knew. I would dig in with them and stand a watch if they wanted me to (Haha, though nobody ever stood up on those watches). The gun teams were always glad to see me –at least after all the noise stopped.

Lang Vei. Once we were sent to a Special Forces A-Team camp, called Lang Vei. There were 15-20 Americans there and several hundred Bru tribes-people. They had a groovy little dug-out with a couple of tables and chairs and a generator and fan(!) and refrigerator with cokes and beer in it. I was sitting in there and in walks an older white woman! She introduced herself – Martha Ray was her name. We talked and then someone came and took her somewhere else. Surreal.

I slept in a supply bunker and rats were everywhere, including from time to time running across my body.

There were a couple of prisoners in the camp, in barbed wire enclosures in the sun like coffins so small they couldn’t sit up.

I went on a patrol with the Special Forces troops. They made me really nervous with all their cluster-fucking short intervals.

Street of Dreams, Hue, 2005. One of my favorite photos that I’ve ever taken.

I was glad to get out of that place. They were overrun a year or so later, with the NVA bringing tanks to the party.

Saigon, 2012 – the food alley where we had breakfast most days. Leslie is sitting against the wall on the left. You can barely see her white hair

Phu Bai. One of the good parts of the job was that I was free to travel in the area of operations, known as I-Corps in northern southern Vietnam. I-Corps was where – by far – most of the fighting took place. Phu Bai was an airfield and Marine base near Hue. For a month or so my old unit, 1/26 (1st Battalion, 26th Marine Regiment) was stationed at Phu Bai before being sent to Khe Sanh. I went there to visit my mate, Jeff. He was staying in a large squad-size tent for 10-12 men. We got pretty drunk and decided to cook up some C-rations. One of the sergeants in the tent wanted us to be quiet and he and Jeff got into a fight. In the midst of the disturbance the sergeant stepped on the blob of plastique (C-4 explosive) we were using to heat the food. The burning C-4 stuck to the bottom of his foot, so not only was he beaten down by Jeff, but sustained a bad burn on his foot. 1/26 was sent to Khe Sanh a day or so later, so nothing ever came of it.

Gio Linh. I went to Gio Linh, one of several fire bases at the DMZ. That was the first time I was on the receiving end of heavy artillery. It’s not like in a movie. The rounds come screaming in unimaginably fast (like maybe half a second) and when they explode it’s a huge metallic bang. No booms in this deal. There’s nothing you can do in a static situation like this. In a battle at least you can keep moving. Marines don’t like to sit in a trench or fighting pit (Marines dig fighting pits; a foxhole is what’s underneath a foxes’ tail).

Saigon at night, 2010

The Hill Fights. From Gio Linh I caught a chopper to somewhere at the DMZ for something called the Hill Fights – a running large unit battle involving I guess 1000s of men in the Con Thien area. That deal was truly balls-to-the-wall. I describe the Hill Fights elsewhere:

https://ckjournal.com/vn-66-67-part-3-psyops-and-the-hill-fights (Looking at this link, I realize I’ve told a couple of stories in this post before. Oh well.)

One late afternoon I came in to a unit that was set up somewhere in a low-lying misty, wooded area after a big fight. It was dark by the time I got to the command post. The CO or someone told me to get out and keep quiet. There were some Marines sleeping nearby, wrapped in ponchos so I just laid down with them and went to sleep. In the morning I realized the men I thought were asleep were all dead.

I needed something to eat so went through a couple of their packs and got some C-rations. I was eating a cinnamon roll when some other men started carrying the bodies to some tracked vehicles, each with four 20mm cannons – “quad-20s.” I was helping load the bodies (bodies are so heavy) and the cinnamon roll was in my mouth and when we lifted one of the bodies my arms were over my head and the black bloody water ran down my arm and down my side. So much for the cinnamon roll.

The Heavyweight Champion of the World. I was in the hospital at Dong Ha for what we called jungle rot (ulcer on my hip from .45 holster rubbing, feet all swollen up, crotch inflamed). No air conditioning or even fans in that place. I was half asleep in a sweaty daze when someone woke me up. There was a kindly-looking middle-aged man standing there. He said something like, “Hi. I’m Floyd Patterson, Heavyweight Champion of the World.” And that’s who he was!

Breakfast in the food alley pictured above

Danang. The psyops unit was stationed in Danang and the troops were billeted in an old French hotel. I went there once a month for a few days to get paid. The room I stayed in was where transients like myself stayed. Just a tall-ceiling bare room with 3 or 4 racks for sleeping. I would come in, dump my muddy, dirty gear against a wall, take a shower, clean my weapon, and sleep, sleep, sleep with a ceiling fan clicking along and nobody shooting at me. Pretty fucking nice!

Once I went to a big base in Danang – I have no idea why – and at the entrance one of the MPs took my magazine out of the rifle I was carrying. I recall that he was surprised that there was a round in the chamber. I didn’t like having an unloaded weapon and as soon as I was inside the base, reloaded.

My M-60, my Big Gun in 1966

On that base I asked someone where a pisser was. He didn’t know what a pisser was. I explained something like, “You know, a piss tube.” He thought I was a crazy man + I couldn’t have smelled very good. Fuckers walking around saluting, no weapons or weapons unloaded, no pissers, eating hot chow, all clean and shaved, REMFs, every goddamned one of them. I couldn’t wait to get out of that place and back to that hotel for a few days of carousing before going back to the war.

Weapons. When I was with my infantry unit (C Company, 1st Battalion, 26th Marine Regiment), I always carried my M-60 machine gun. I got to be a squad leader, but continued to carry the Big Gun. They wanted me to quit and do squad leader stuff, but I wouldn’t and when the Gunny or Lt. confronted me I would just say, okay, and then as soon as we were out of sight, I’d take the gun back from whoever I’d pretended I was giving it to.

Hanoi, 2012

Gunners also carry a .45, which, in the civilian world is a big handgun, but in a war, hardly signifies. I sold my .45 to another Marine, who sent it to his criminal brother back in The World. I got another .45 off a body. I don’t remember what happened to that one.

I seldom carried grenades or a K-bar, because I always carried extra ammo for the gun and didn’t need anymore weight. Machine guns are all about maximum firepower – fire superiority it was called. By the time I cranked off the first 200 rounds, someone would be there with another 200. Pretty soon that fucking barrel would be smoking – too hot to touch.

When I went to the psyops unit I carried an M-14 with a nice sniper’s bipod. It was a very accurate weapon. I carried a shotgun on one

Countryside near Hue.

or two patrols, but it was an awkward thing and good only for close-in work, which wasn’t happening, thankfully.

Before psyops. After operations down south and then up at the DMZ, we realized we really were doomed youth. And it was like, oh well, fuck it. It was like one of the Foreign Legion commanders said to his troops at Dien Bien Phu: “You’re here to die.” (What an asshole. They should have fragged him right there.) Few of us sought or tempted death and few of us shrunk from it. Like I said, weird shit.

_______________

In Hue

Jean is still in the back at Cardiac Procedures. We got here at 0630 and it’s now 1230. There’s just one other family member left here now. Just sitting here. Suspended. Looking up every time a door opens. Getting hungry. Afraid to leave and good luck eating, anyway. Calling up old Bob Seger on my iPhone jukebox. Receptionist just told the other person waiting, “”They’ll be out to talk with you in a minute.”

1:30. Finished. Haven’t seen Jean yet, but procedure done and she’s in rhythm.

Garden, Berkeley, 2019

Strawberries, salvia, iris, more salvia, thyme

The first glimmer was long ago pictures of some New Zealand cottage gardens. Then the gardens at City of Hope Cancer Hospital near LA. And Mitta Angel’s front garden and riding around with David when he was learning to drive – in Old East Dallas, especially Hollywood Heights, seeing gardens in front of homes – cottage gardens… From my Cottage Garden page – put up in 2003.

Sweet peas on the compost, recycle “corral”

Now I’m in Berkeley, which must surely be the cottage garden (and hippie garden) capital of the universe! We took out the front garden to revision the front – including putting in a fence to keep the deer out. Now, in addition to the beautiful flowers that were here in the front garden before, there is a kitchen/herb garden in front. A pretty curving stone path starts at the arbor and splits to go to the kitchen door (the one everyone uses) and to the front door. No lawn – all flowers and herbs.

Herbs in the front (kitchen) garden:

Going up path from kitchen steps

Thyme
Lemon thyme
French tarragon
Lemon grass
Sage
Chives
Oregano
Sweet marjoram
Lemon verbena

Map of the garden – posted on corral gate

Lemon balm
Rosemary
Peppermint
Spearmint
Borage
Parsley
Basil (sweet, lime and Genovese)
Cilantro
Chamomile

Other good things in front include about 25 ever-bearing strawberries (Seascape and a few other strains). We have two blueberry bushes, which will give a few berries this year. Lemon tree. Lime tree. Garlic is coming up. Raspberries look strong. We put in one Sungold tomato in front. I planted cantaloupes (Ambrosia) and cucumbers yesterday.

I’m excited that this year is the first time I’ve ever grown sweet peas and foxglove. One of the sweet peas is blooming,

Front gate. Sculpture by Bill Sorich.

but I think the ones I planted from seed will need another 3-4 weeks to bloom.

Flowers in bloom right now. There is a beautiful clematis with white flowers on the arbor. Also, the aforementioned sweet peas, manzanita, coreopsis, sweet alyssum, lantana, rosemary, lavender, tansy, rose, blue salvia, butterfly sage, purple bell vine (rhodochiton), maroon salvia, orange-red salvia, iris (from Jean’s father and from Sydney), camellia, helleboros, calla lilies, borage, nasturtium, persicaria, loropetalum, Aztec marigold, and impatiens sodenii. Alstromarium, foxglove, and hollyhocks are budding.

Berries photographed in 2018

And so the garden grows. Baked chocolate chunk cookies yesterday. Gave some to the people across the street. A few weeks ago we got a bale of straw for the strawberries (to keep the berries off the dirt so they won’t rot as they ripen). Now we seem to be growing a fine crop of hay alongside the strawberries.

 

At Peace: Choosing a Good Death After a Long Life

At Peace

I’ve written many thousands of words in this blog, but this is only the second time I’ve discussed/reviewed AND strongly recommended a book here. Rather than try to write a coherent document, I’ll just offer quotes and comments on some of the important concepts in this important book and some of my own thoughts.

At Peace: Choosing a Good Death After a Long Life is a book for our times – for those of us who are living a long life and for those who are connected to loved ones who are at the end of life. Because, you know, we are all going to die. The only questions are when and how and who will be in control?

Are you one who would fight to the end? Be wary. To be clear: I am talking about older people with few physical reserves and no prospect of a long, independent life. For a young person, with physical reserves and the possibility of a long, independent life, fight on.

To every thing there is a season,
and a time to every purpose under the heaven:

A time to be born, a time to die;

a time to plant, and a time to pluck up that which is planted;

A time to kill, and a time to heal;

a time to break down, and a time to build up;

A time to weep, and a time to laugh;

a time to mourn, and a time to dance;

A time to cast away stones, and a time to gather stones together;

a time to embrace, and a time to refrain from embracing;

A time to get, and a time to lose;

a time to keep, and a time to cast away;

A time to rend, and a time to sew;

a time to keep silence, and a time to speak;

A time to love, and a time to hate;

A time of war, and a time of peace.

At Peace guides readers to the death they would choose (as much as death can be chosen), which, generally speaking would be in as much control as possible, at home, with loved ones, free of pain and other distressing physical issues, with dignity, and so on.

Hospice is NOT for the final few days of one’s life; to be most helpful and effective, hospice is best initiated when there are months of life left and problems are lesser rather than days or weeks left and after problems are severe. So much better to prevent problems.

Visualize the quality of your final days. 

Planning on dying peacefully in one’s sleep isn’t much of a plan because that’s not usually the way it goes – unless one counts coma at the end of life as sleeping.

The cure for what ails us is not just around the corner.

The facts of CPR are that “the overall success rate… is 8-18%… and among the old and infirm (success) ranges from 0-8%” (p. 257; reported in the New England Journal of Medicine).

“…once intensive medical treatment is initiated, its momentum and outcomes are largely out of your control, and declining such treatment puts you back in charge” (p. xvii).

A person who reaches age 65 in “reasonable health” can expect to live almost 20 more years, almost half of which are “likely to be disabled years” (p. 33). How do we know when we are shifting from aging to disabled? When we need help cooking and cleaning? Toileting? When we fall and can’t get up? These are “milestones from which there is no turning back” (p. 43).

We already know these things are true – that it’s easy to be treated past rational hope and so spend the last months of life being tested, treated and in a hospital or nursing home. It seems like we often just kind of push reality out of mind because, you know, some pretty horrible things can and do happen and it may seem easier to not think about them except in general hypothetical terms AND, there’s that hope thing.

“Understand that with age the risk of treatment increases and the benefit decreases” (p. 48).

Medicalization as a means of “buying time” – what kind of time will it be and where will that time be spent? In the absence of some specific time goal (birth of a grandchild), the idea is to improve the quality of life in whatever time remains.

Dementia: At Peace offers a clause for progressive dementia in an Advanced Directive. I believe this alone is worth the price of the book. Some among us will have Alzheimer’s. It’s comforting that caregivers will know exactly when to discontinue all but palliative medications, when to discontinue doctor visits, lab tests, and so on – with the end goal being an early and natural death and less time in a demented state.

Terminal dehydration is a good option in “creating a good death because it requires a combination of disease, debility, and willful intention to institute” (p. 198).

“The paradigm shift we need is not a technical one; it is spiritual, emotional, or intellectual. We do not need encouragement to believe in miracles. We need to understand there will not be an endless series of miracles” (p. 215).

Visualize the quality of your final days.”…having no plan and no limits practically guarantees excessive treatment and increases the risks of a hospitalized death” (p. 48).

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Some tools

Who matters the most, what matters the most, I matter too (life review, wishes, goals). This is similar to part of what we did in hospice training and other venues. https://med.stanford.edu/letter.html

“The Conversation” https://theconversationproject.org/

Memorial Sloan-Kettering prognosis tool for some types and stages of cancer. https://www.mskcc.org/nomograms “On average, the most likely thing will happen” (p. 156).

UCSF risk/benefit tool. https://eprognosis.ucsf.edu/

National Hospice and Palliative Organization. http://www.caringinfo.org/

Formerly the Hemlock Society. https://compassionandchoices.org/

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“This getting old is getting old.” Fred Kling